Patrick Quinn, the co-creator of the popular ALS Ice Bucket Challenge fundraising campaign, died on Sunday. He was 37.

The Facebook page Quinn for the Winn announced the news in a post on the social media platform. “It is with great sadness that we must share the passing of Patrick early this morning,” the statement read. “We will always remember him for his inspiration and courage in his tireless fight against ALS.”

ALS is an incurable nervous system disease that weakens nerve cells in the brain and spinal cord, eventually killing them off. And the prognosis is tragically poor, though it depends on the person — the average survival time post-diagnosis is three years. Twenty percent will live to five years, 10 percent will live another 10 years and 5 percent will live 20 or more.

Quinn’s work with the Ice Bucket Challenge helped raise over $220 million in medical research for the disease.


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